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Resources

 

Books

Bruni, Maryanne. Fine Motor Skills in Children with Down Syndrome: A Guide for Parents and Professionals. Bethesda, MD: Woodbine House. 1998.

Kumin, Libby. Early Communication Skills in Children with Down Syndrome. Bethesda, MD: Woodbine House. 2003.

Schwartz, Sue. The New Language of Toys: Teaching Communication Skills to Children with Special Needs. Bethesda, MD: Woodbine House. 2004 (3rd Edition).

Stray-Gundersen, Karen (Ed.). Babies With Down Syndrome: A New Parents Guide. Bethesda, MD: Woodbine House. 1995 (2nd Edition).

Winders, Patricia C. Gross Motor Skills in Children with Down Syndrome: A Guide for Parents and Professionals. Bethesda, MD: Woodbine House. 1997.

(Woodbine House is a publisher specializing in books about children with special needs. Their contact information is: 6510 Bells Mill Road, Bethesda, MD 20817; www.woodbinehouse.com; 800-843-7323.)

Videos

Down Syndrome, The First 18 Months
Journey of a Lifetime.... Beginning with the End in Mind.

Organizations

National Down Syndrome Society
666 Broadway, 8th Floor
New York, New York 10012
(800) 221-4602
E-mail:  info@ndss.org
www.ndss.org

National Down Syndrome Congress
1370 Center Drive, Suite 102
Atlanta, GA 30338
(800) 232-NDSC (6372)
Local: 770-604-9500
Fax: 770-604-9898
E-Mail: info@ndsccenter.org

Mohawk Valley Down Syndrome Support and Awareness Group c/o Upstate Cerebral Palsy
258 Genesee Street
Utica NY 13502
(315) 738-0794

Kennedy-Willis Center on Down Syndrome Pathfinder Village
3 Chenango Road
Edmeston NY 13335
(607) 965-8377 Ext. 128
(607) 965-8655
E-Mail: info@pathfinder.tzo.com
www.pathfindervillage.org

Down Syndrome Association of Central New York
P.O. Box 5
Manlius NY 13104
(315) 682-4289
E-Mail:  dsaofcny@aol.com
www.dsaofcny.org

Oneida County Health Department
800 Park Avenue, 3rd Floor
Utica, New York 13501
Main: (315) 798-6400
Fax: (315) 731-3491
www.ocgov.net

Onondaga County Health Department
501 East Fayette Street, Suite B
Syracuse, New York 13202
Main: (315) 435-3230
Fax: (315) 435-2678
www.ongov.net

New York State Department of Health
Corning Tower
Empire State Plaza,
Albany, NY 12237
(518) 473-7016
www.nyhealth.gov

American Occupational Therapy Association
4720 Montgomery Lane
Bethesda, MD 20824
(800) 377-8555
www.aota.org

American Physical Therapy Association
1111 N. Fairfax Street
Alexandria, VA 22314
(800) 999-2782
www.apta.org

American Speech-Language-Hearing Association
10801 Rockville Pike
Rockville, MD 20852
(800) 638-8255
www.asha.org

Early Childhood Intervention Clearinghouse
830 South Spring Street
Springfield, IL 62704
(800) 852-4302
www.eiclearinghouse.org

National Information Center for Children and Youth with Disabilities (NICHCY)
P.O. Box 1492
Washington, D.C. 20013-1492
(800) 695-0285
www.nichcy.org

STAND (Statewide Advocacy Network on Disablities, Inc.)
PO Box 172236
Tampa, FL 33672-0236
(813) 258-5700
www.standadvocates.org

Source:  National Down Syndrome Congress

NEWS

Daring to Dream Inclusive Dreams

Please join the Mohawk Valley Down Syndrome Support Group on May 17, 2012 for "Daring to Dream Inclusive Dreams, Utilizing Our Collective Power to Include". This conference topic has been fueled by the ground-breaking and important documentary entitled "Including Samuel",and by local self-advocates and parents of children with...

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A Week-long Down Syndrome Series

Follow the link to hear from experts about clinical trials in regards to Alzheimer's , early intervention and cognitive development, from people with Down syndrome and from parents of someone with Down syndrome.

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Fundraiser Focus

We were featured in the September 2011 NDSS Newsletter. Check it out!

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Matt Hamill will be Signing Autographs.

Matt Hamill, a three-time NCAA Wrestling Division III National Champion, will be at the ride at 1pm, greeting riders as they come in and signing autographs.

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"Talk of the Town" Radio Interview

Listen to our interview on 95.5FM WUTQ's with details of the 3rd Annual Brody's Buddy Ride 7-19-2011

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