Resources

 

Books

Natalie Hale, Down Syndrome Parenting 101: Must-Have Advice for Making Your Life

Kelle Hamptom, Bloom: Finding Beauty in the Unexpected--A Memoir

Bruni, Maryanne. Fine Motor Skills in Children with Down Syndrome: A Guide for Parents and Professionals. Bethesda, MD: Woodbine House. 1998.

Kumin, Libby. Early Communication Skills in Children with Down Syndrome. Bethesda, MD: Woodbine House. 2003.

Schwartz, Sue. The New Language of Toys: Teaching Communication Skills to Children with Special Needs. Bethesda, MD: Woodbine House. 2004 (3rd Edition).

Stray-Gundersen, Karen (Ed.). Babies With Down Syndrome: A New Parents Guide. Bethesda, MD: Woodbine House. 1995 (2nd Edition).

Winders, Patricia C. Gross Motor Skills in Children with Down Syndrome: A Guide for Parents and Professionals. Bethesda, MD: Woodbine House. 1997.

(Woodbine House is a publisher specializing in books about children with special needs. Their contact information is: 6510 Bells Mill Road, Bethesda, MD 20817; www.woodbinehouse.com; 800-843-7323.)

Videos

Down Syndrome, The First 18 Months
Journey of a Lifetime.... Beginning with the End in Mind.

Organizations

National Down Syndrome Society
666 Broadway, 8th Floor
New York, New York 10012
(800) 221-4602
E-mail:  info@ndss.org
www.ndss.org

National Down Syndrome Congress
1370 Center Drive, Suite 102
Atlanta, GA 30338
(800) 232-NDSC (6372)
Local: 770-604-9500
Fax: 770-604-9898
E-Mail: info@ndsccenter.org

The 21 Club of CNY, Inc.
PO Box 264
Washington Mills, NY 13479
www.the21club.org

Mohawk Valley Down Syndrome Support and Awareness Group c/o Upstate Cerebral Palsy
258 Genesee Street
Utica NY 13502
(315) 738-0794

Gigi's Playhouse- Syracuse Down Syndrome Awareness Centers
5885 East Circle Drive
Suite 250
Cicero, NY 13039
315-288-PLAY (7529)
adonofrio@gigisplayhouse.org
www.gigisplayhouse.org/Syracuse

Kennedy-Willis Center on Down Syndrome Pathfinder Village
3 Chenango Road
Edmeston NY 13335
(607) 965-8377 Ext. 128
(607) 965-8655
E-Mail: info@pathfinder.tzo.com
www.pathfindervillage.org

Down Syndrome Association of Central New York
P.O. Box 5
Manlius NY 13104
(315) 682-4289
E-Mail:  dsaofcny@aol.com
www.dsaofcny.org

Oneida County Health Department
800 Park Avenue, 3rd Floor
Utica, New York 13501
Main: (315) 798-6400
Fax: (315) 731-3491
www.ocgov.net

Onondaga County Health Department
501 East Fayette Street, Suite B
Syracuse, New York 13202
Main: (315) 435-3230
Fax: (315) 435-2678
www.ongov.net

New York State Department of Health
Corning Tower
Empire State Plaza,
Albany, NY 12237
(518) 473-7016
www.nyhealth.gov

American Occupational Therapy Association
4720 Montgomery Lane
Bethesda, MD 20824
(800) 377-8555
www.aota.org

American Physical Therapy Association
1111 N. Fairfax Street
Alexandria, VA 22314
(800) 999-2782
www.apta.org

American Speech-Language-Hearing Association
10801 Rockville Pike
Rockville, MD 20852
(800) 638-8255
www.asha.org

Early Childhood Intervention Clearinghouse
830 South Spring Street
Springfield, IL 62704
(800) 852-4302
www.eiclearinghouse.org

National Information Center for Children and Youth with Disabilities (NICHCY)
P.O. Box 1492
Washington, D.C. 20013-1492
(800) 695-0285
www.nichcy.org

STAND (Statewide Advocacy Network on Disablities, Inc.)
PO Box 172236
Tampa, FL 33672-0236
(813) 258-5700
www.standadvocates.org

Source:  National Down Syndrome Congress